Moyamoya Syndrome News

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Mother reveals her boy, 10, is a 'ticking time-bomb' and could die if he blows a balloon up or gets too excited - Daily Mail



Daily Mail
 
Mother reveals her boy, 10, is a 'ticking time-bomb' and could die if he blows a balloon up or gets too excited 
Daily Mail
Mrs Kilkenny explained: 'Moyamoya is quite rare, so there aren't many specialists here. 'We were told to just watch and wait and take him to hospital if there were signs of any more strokes, but the idea of just waiting for it to happen broke my heart ...

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What Is Moyamoya Disease? - U.S. News & World Report



U.S. News & World Report
 
What Is Moyamoya Disease? 
U.S. News & World Report
The disease, which tends to strike either in childhood or in people's 30s or 40s, can be understood like a traffic jam, Smith explains. Just imagine that the carotid artery is a highway that forks into two roads: one that delivers blood to the brain ...

 


After having brain surgery, Murfreesboro girl creates hope with bracelet business - The Daily News Journal



The Daily News Journal
 
After having brain surgery, Murfreesboro girl creates hope with bracelet business 
The Daily News Journal
Soon after, she was diagnosed with moyamoya disease, which is also a rare and progressive cerebrovascular disorder caused by blocked arteries at the base of the brain in an area called the basal ganglia. Both those issues cause Hannah excruciating ...

 


Moyamoya: A disease well fought in Bangladesh? - Dhaka Tribune



Dhaka Tribune
 
Moyamoya: A disease well fought in Bangladesh? 
Dhaka Tribune
Even though the disease is quite unknown in Bangladesh, there are quite a number of patients who have been treated successfully at the National Institute of Neurosciences and Hospital (NINSH) in Dhaka's Agargaon. Until now, 30 patients have undergone ...

 


After two brain surgeries, a loss of language and a breakup, beat producer Tokimonsta reflects on a tough few years - Los Angeles Times



Los Angeles Times
 
After two brain surgeries, a loss of language and a breakup, beat producer Tokimonsta reflects on a tough few years 
Los Angeles Times
For the past decade, Lee, 30, had made music under the moniker Tokimonsta, and during a recent afternoon at her Koreatown apartment she recalled those traumatic months when, after establishing herself as a globe-trotting force at dance music festivals ...

 


David's battle: 'Who is supposed to take care of him?' - Radio New Zealand



Radio New Zealand
 
David's battle: 'Who is supposed to take care of him?' 
Radio New Zealand
An Auckland mother fears her four-year-old son will be confined to the corner at his crèche, unable to learn, because of what she says is a lack of teacher aides for children with disabilities. Lucy Bennett and her son David, who has neurofibromatosis ...

 


Walpole's Justin Doo wins Humanitarian Award - www.hometownweekly.net (press release)



www.hometownweekly.net (press release)
 
Walpole's Justin Doo wins Humanitarian Award 
www.hometownweekly.net (press release)
Walpole's Justin Doo, a graduate of Xaverian Brothers High School, has been awarded the Corey C. Griffin Humanitarian Award by Boston Children's Hospital. Doo's decade-long mission to drive awareness and funds to the cause of moyamoya disease was the ...

 


Brain Surgery Stole Tokimonsta's Ability to Make Music. Here's How She Got It Back - L.A. Weekly



L.A. Weekly
 
Brain Surgery Stole Tokimonsta's Ability to Make Music. Here's How She Got It Back 
L.A. Weekly
She was diagnosed with moyamoya, a rare, progressive vascular disorder in which the arteries that provide blood flow to the brain, including the vital carotid arteries, begin to narrow. Untreated, the disease is fatal. In the three months following the ...

 


Moyamoya Disease Affects Females More Severely - Medical News Today



Moyamoya Disease Affects Females More Severely 
Medical News Today
According to a recent study by Lippincott Williams & Wilkins, published in the journal Neurosurgery, women and girls have an increased risk of unfavorable outcomes following surgery for treatment of moyamoya disease. Moyamoya disease is a rare disorder ...

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Rare Disease Doesn't Stop Model from Shining - Rare Disease Report



Rare Disease Report
 
Rare Disease Doesn't Stop Model from Shining 
Rare Disease Report
Rare Disease Doesn't Stop Model from Shining. NOVEMBER 21, 2016. Andrew Black. For model and Moyamoya disease patient Liz Bos, it all started 2 years ago. While typing on her computer, she suddenly lost feeling in her left hand. After being rushed to ...