Neurofibromatosis News

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NF fundraiser planned for Saturday night - Post-Bulletin



Post-Bulletin
 
NF fundraiser planned for Saturday night 
Post-Bulletin
Gus Erickson, 5, of Rochester, has a genetic disorder called Neurofibromatosis (NF), which causes tumors to form on nerve tissue. He was recently named the 2017 NF Champion for courage and optimism by the Neurofibromatosis Network. His father, Gregg ...

 


Young mum shares heartbreaking video of daughter, 2, in desperate ... - The Sun



The Sun
 
Young mum shares heartbreaking video of daughter, 2, in desperate ... 
The Sun
A YOUNG mum has shared a heartbreaking video of her little girl's cancer treatment in a race against time to raise 300,000 to send her to the US for treatment.

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Courageous mum covered in thousands of 'bubble tumours' braves beach in swimming costume - Mirror.co.uk



Mirror.co.uk
 
Courageous mum covered in thousands of 'bubble tumours' braves beach in swimming costume 
Mirror.co.uk
Her son's neurofibroma had turned cancerous, which is now known to occur in up to 10 percent of neurofibromatosis type-1 sufferers. Sandra said: ?I always asked the doctors if it was due to my condition, they said it wasn't related to it. But when he ...
Sandra De Santos Covered in Thousands of Bubble-Like Tumors ... The British Journal
Mother Covered in Thousands of Bubble-Like Tumors Reveals Husband Fell in Love with Her Lumps PopCulture.com

all 5 news articles » 


What You Need to Know About Pancreatic Cancer - Westchester Magazine



Westchester Magazine
 
What You Need to Know About Pancreatic Cancer 
Westchester Magazine
... gender (men are at higher risk than women), race (African Americans are at higher risk), family history, and inherited genetic disorders (BRCA1 & 2, FAMM, Lynch syndrome, Peutz - Jeghers, for NET: Neurofibromatosis, Multiple endocrine neoplasia ...

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Schutza, Kevin Glen - Waco Tribune-Herald



Waco Tribune-Herald
 
Schutza, Kevin Glen 
Waco Tribune-Herald
... Kevin's memory are requested to do so to the National Organization for Rare Diseases (NORD) to help further the research for neurofibromatosis type 2 (https://rarediseases.org/rare-diseases/neurofibromatosis-2/), VA Regional Office or Providence ...

 


Lawton 10-year-old fighting optic nerve tumor - kfor.com



kfor.com
 
Lawton 10-year-old fighting optic nerve tumor 
kfor.com
She says the pediatrician picked up on the fact that a genetic disorder called Neurofibromatosis runs in the family. It causes tumors to form on nerve tissue, which can be benign or in some cases, malignant. The pediatrician recommended the 10-year-old ...

 


Walpole native helps marathon bombing survivor's foundation - Wicked Local Walpole



Wicked Local Walpole
 
Walpole native helps marathon bombing survivor's foundation 
Wicked Local Walpole
In December 2013 Cohen, then 24, made the difficult choice to amputate her right leg above the knee after years of suffering from neurofibromatosis. Neurofibromatosis is a genetic condition that causes tumors to form on nerve tissues. In Cohen's case ...

 


It's for charity! The Bachelorette's Apollo Jackson and Survivor's Flick Egginton strip down for racy shoot to raise ... - Daily Mail



Daily Mail
 
It's for charity! The Bachelorette's Apollo Jackson and Survivor's Flick Egginton strip down for racy shoot to raise ... 
Daily Mail
And now The Bachelorette's Apollo Jackson and Australian Survivor's Felicity 'Flick' Egginton have teamed up to strip down for charity. The genetically-blessed duo, who were friends in high school, got down to their underwear for a photoshoot to ...

 


Chorley mum asks well-wishers to help poorly Jessica celebrate her birthday in style - Lancashire Evening Post



Lancashire Evening Post
 
Chorley mum asks well-wishers to help poorly Jessica celebrate her birthday in style 
Lancashire Evening Post
?Jessica has a rare genetic condition called Neurofibromatosis which means that she has multiple aneurysms to her renal artery,? said Jemma, who is also Jessica's full-time carer. ?She has cysts on one of her kidneys, hyper-mobile joints, ADHD and she ...

and more » 


Veterans Park hosts annual Alabama NF Walk - HooverSun.com - Hoover Sun



Hoover Sun
 
Veterans Park hosts annual Alabama NF Walk - HooverSun.com 
Hoover Sun
The Children's Tumor Foundation held its fourth annual Alabama NF Walk on Sunday at Veterans Park.

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