Neurofibromatosis 
Fairbanks Daily News-Miner
May is Neurofibromatosis Awareness Month so, in honor, I would like to share my story. My 5-year-old daughter Holly is the first in our family with neurofibromatosis and has type 1 (NF1). Like 50 percent of all cases of NF1, a spontaneous mutation ...

 

Growing on my nerves 
Malaysia Star
By TAN SHIOW CHIN Dealing with the varied symptoms caused by the tumours of neurofibromatosis type 2 is a never-ending battle. TUMOURS are not always cancerous, or malignant. Those tumours that do not invade the surrounding tissues or spread to other ...

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Shedding light on Neurofibromatosis 
North Platte Telegraph
MCCOOK - Chelsey Eng has lived with Neurofibromatosis her entire life, but doesn't let it get the better of her. Eng, 22, was born in Omaha but adopted at birth by Gary and Lisa Eng , who lived in McCook at the time. She now lives in McCook and works ...

 

Own KISS Doobles For A Good Cause (A Top Story) 
antiMUSIC.com
Neurofibromatosis is a genetic disorder that affects one in every 2500 births. NF is more common than Cystic Fibrosis, Muscular Dystrophy and Huntington's Disease combined. As part of NF Awareness month, celebrity doodles, including the ones pictured ...

 

Person of the Week: 'Making wishes come true': Hockey tourney is father's way ... 
The Tribune-Democrat
Dylan has neurofibromatosis, a disease that can cause tumors to develop. Dylan was diagnosed with the disease in 2001, when he developed a tumor on the optic nerve, Shaffer said. Doctors were able to shrink the tumor through chemotherapy.

 

Milton Residents Meet with Gov. Patrick About Neurofibromatosis Awareness Month 
Patch.com
Michelle Hirsch Donovan, MD, Ph.D. and Michael Donovan, both of Milton, recently attended Governor Deval Patrick's declaration that May is Neurofibromatosis Awareness Month. Milton resident Michelle Hirsch Donovan, MD, Ph.D. Neurofibromatosis, Inc., ...

 

In choosing a sperm donor, a roll of genetic dice 
Indian Express
The illnesses include heart defects, spinal muscular atrophy and neurofibromatosis type 1, among others. Hundreds of cases have been documented, but it is likely there are thousands more, according to Wendy Kramer, founder of the Donor Sibling Registry ...
Choosing a Sperm Donor Is a Roll of the Genetic Dice NewsMax.com

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Arno AR-42 for neurofibromatosis type 2 receives EMA orphan-drug designation 
News-Medical.net
... ARNI) announced today that its investigational compound known as AR-42 has been granted orphan-drug designation by the European Medicines Agency's (EMA) Committee for Orphan Medicinal Products for the treatment of neurofibromatosis type 2 (NF2).

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Being okay no matter what 
New Straits Times
By Keisha Petrus 1 comments NEUROFIBROMATOSIS. A mouthful, isn't it? Wouldn't disagree there. Sounds alien, even dangerous. My name is Keisha Somasundram Petrus, and I am 22 years old. I have been living with Neurofibromatosis Type 2, or NF2, ...

 

On June 3, 2012 NF WALK Los Angeles, CA 2012 Will Raise Funds for Research in ... 
Westside Today
Neurofibromatosis (NF) affects two million people worldwide -- The Children's Tumor Foundation is working to improve the lives of those affected by this genetic disorder raising funds and awareness with The 7th Annual NF Walk on June 3, 2012 in Studio ...